Monday, April 22, 2013

These drugs are ex.pen.sive

Another month has gone by. Happy things first. Spring is beautiful in the foothills. We have wildflowers and green hills as far as the eye can see. Deer have been sleeping close to our home, right down from the deck. I think Puppy has decided that deer are her friends. She still barks at the crows and hawks and vultures when they fly too low. She is so proud of herself for making them fly away.

We are having another issue with getting the Aralast infusions. Wow, it was going so well. I was feeling good, and pretty much knew what to expect of my breathing abilities. Then, ouch. No more funding. Aralast infusions cost around $120,000 per year. That's $10,000 per month and about $2500 a week. That's just for the medicine. There are also medical supplies to pay for, and the nurse. Since Bob sold his share of the surveying company we have not had insurance. That's been about 7 years or so. We did okay without it, until we found out about this alpha-1 antitrypsin deficiency. There is help out there for people in our situation. I have filled out enough paperwork to fill up at least 2 file cabinets since my diagnosis. And trying to keep it organized, well, where is Donnay when you need her? Anyway, I hope we are just between funding assistance. But it takes its toll. 

Keepin' on keepin' on. That's what we're doing. And enjoying the ride while we do. Bob is the best, and life is good.

5 comments:

  1. Are you going to save your filing like you did your clean socks for me to sort and match? Love you.

    ReplyDelete
  2. Dee, I am so proud of you and Bob, what you have gone thru, and what you continue to fight thru. It is a real eye openner seeing the cost of your medicine. Please keep hanging in there. I pray that you have crossed all the "T"s and dotted all "i"s, and that you don't hear there is one more document to fill out, before you get the necessary funding assistance. Dee the picture you painted talking about spring is the vision you must keep. Take care my sweet friend. -- Bill

    ReplyDelete
    Replies
    1. Thanks Bill. I am tired. But hopeful. And grateful.

      Delete
  3. That's good. Crows are bad!!

    ReplyDelete