Monday, April 22, 2013

These drugs are ex.pen.sive

Another month has gone by. Happy things first. Spring is beautiful in the foothills. We have wildflowers and green hills as far as the eye can see. Deer have been sleeping close to our home, right down from the deck. I think Puppy has decided that deer are her friends. She still barks at the crows and hawks and vultures when they fly too low. She is so proud of herself for making them fly away.

We are having another issue with getting the Aralast infusions. Wow, it was going so well. I was feeling good, and pretty much knew what to expect of my breathing abilities. Then, ouch. No more funding. Aralast infusions cost around $120,000 per year. That's $10,000 per month and about $2500 a week. That's just for the medicine. There are also medical supplies to pay for, and the nurse. Since Bob sold his share of the surveying company we have not had insurance. That's been about 7 years or so. We did okay without it, until we found out about this alpha-1 antitrypsin deficiency. There is help out there for people in our situation. I have filled out enough paperwork to fill up at least 2 file cabinets since my diagnosis. And trying to keep it organized, well, where is Donnay when you need her? Anyway, I hope we are just between funding assistance. But it takes its toll. 

Keepin' on keepin' on. That's what we're doing. And enjoying the ride while we do. Bob is the best, and life is good.