Phew, glad that one is over. Frank (father-in-law) was here. He brought me a very cool homemade armboard to help keep my hand still. That way the needle will stay in the vein instead of poking through it. Bob took 4 tries to find my vein. It hurt a little. But other than that all went smoothly. I think it's getting a little bit easier. Plus Frank brought us yummy sandwiches.
I am going to start keeping a journal about how I feel and how much energy I have each day. I'll keep it simple. I'm curious to know if the alpha-1 antitrypsin is helping me feel better. I know I'm not feeling worse, but I think it's time to record it.
Sunday we went to Yosemite Lake and played with the kids and grandkids and Aunt Jilly and Grampa Frank. It was a beautiful day, and we had a wonderful time. It was also Amy's birthday. Happy birthday baby. I love you. Her Pooh bear from Disneyland still sings, 20+ years later. That is so comforting to me.
Dee, I am constantly amazed on how well you and your family have adjusted to doing this at home. Frank must have an extremely steady hand, and clearly you have great patience, and the combination works great. The idea of a journal is very good, you might find things that trigger both good and bad, which can also be helpful. Keep writing it does the body good. Take care and have a pleasant day. -- Bill
ReplyDeleteHi DeeDee! Can I just tell you how much I admire you?!!! You are a rock, and so amazing through all of this.
ReplyDeleteHappy Birthday to your sweet Amy!!!! I always remember her smiles....
Glad you had a good, fun day at Yosemite Lake! And I'm also glad you're keeping a journal...I have often thought that I need to do the same...I had an aunt get after me the other day for not having my history written....someday?????
Love you Deed....my thoughts and prayers are always with you!
Deb~~(Butch's)